Inflammatory Bowel Disease Working Group

Group Chair (2024- 2027): Anthi Thangarajah

Overview/aims and objectives of the Group:

The IBD working group has been leading on and contributed to multiple projects within the key categories outlined below (with examples of completed project over the last 3 years). Our aim is to ensure that there is strong PIBD representation within national IBD committees and groups (including the British Society of Gastroenterology), to highlight shortcomings and promote improvement of care for children and young people with IBD.

1. Collaborative National and International Surveys and Guideline Development 

  • International RAND Panel to evaluate the use of thromboprophylaxis in paediatric inflammatory bowel disease (collaboration with international PIBD expert group led by Richard Hansen, Aberdeen)
  • Genomic diagnosis and care co-ordination for monogenic inflammatory bowel disease in children and adults: consensus guideline on behalf of the British Society of Gastroenterology and British Society of Paediatric Gastroenterology, Hepatology and Nutrition (collaboration with national and international mIBD experts led by Holm Uhlig, Oxford).
  • Variation in access and prescription of vedolizumab and ustekinumab in paediatric inflammatory bowel disease patients: a UK-wide study (UK wide survey led by the IBD Working Group).
  • IBDUK: IBD Survey: The IBD WK was actively involved in developing the next version of the Survey with stronger emphasis on developing/adapting paediatric IBD-related questions.
  • James Lind Alliance Digital Technology for Adolescents and Young Persons with Inflammatory Bowel Disease Priority Setting Partnership (collaboration with group of IBD experts and IBD stakeholders led by Priya Narula and Naila Arebi).

2. Supporting IBD Training and Teaching 

  • BSPGHAN PIBD Fellow Framework: This project aims to provide a structured framework to outline PIBD training for doctors in stand-alone middle-grade posts (IBD Working Group)

3. Platform for PIBD related activities and projects across the UK

  • Network of Paediatric IBD Centres: NEPIC aims to capture paediatric centres in the UK and their lead IBD clinician and CNS. The NEPIC Map will be kept in the members area of the BSPGHAN homepage.

4. WG representation in other societies including allied HCP groups 

  • IBD WG is represented in the Royal College of Nursing (RCN) Inflammatory Bowel Disease Network
  • BSG IBD Section Committee
  • IBD UK Board

List of members:

  • Kwang Yang Lee – Consultant Paed GI (Bristol) – Secretary 2024-
  • Astor Rodrigues – Consultant Paed GI (Oxford) 2022-
  • Gemma Lee – IBD CNS (Evelina) 2022-
  • Tish Burgess – IBD CNS (UCLH) 2022- 
  • Kelsey Jones – Consultant Paed GI (GOSH) 2023- 
  • Rebecca Little – Consultant Paed GI (Glasgow) 2024- 
  • Tracy Coelho – Consultant Paed GI (Southampton) 2024- 
  • Marco Gasparetto – Consultant Paed GI (Norfolk and Norwich) 2024-
  • Jo Parker – IBD CNS (Brighton) 2024-
  • Sam Kalamachi – SPIN Paed GI (Lewisham) 2024-
  • Lauren Arpe – Dietician (GOSH) 2024-

PIBD Fellowship

The PIBD fellowship offers an exciting opportunity for trainees to develop specialised clinical expertise in Inflammatory Bowel Disease (IBD) while advancing their careers at a leading IBD Centre. This page outlines the criteria for obtaining PIBD fellowship endorsement and details the application process. The BSPGHAN is proud to endorse PIBD fellowships, ensuring our fellows receive comprehensive, advanced training under the guidance of experienced mentors. To provide the best training experience, centres must implement a formal training plan for this intensive one-year program. While we generally anticipate that fellows will pursue this fellowship after achieving their Certificate of Completion of Training (CCT), we also welcome applications from those in the later stages of higher speciality training with relevant experience. One significant benefit for centres is the ability to promote their job postings with BSPGHAN endorsement. Moreover, the BSPGHAN is committed to showcasing all available endorsed UK IBD fellowships to our vibrant community of trainees. We’re excited about the possibilities this fellowship presents and are here to support their journey into advanced PIBD training!

PIBD Fellowship 2023 SOP