President 2nd April 2020:  Update 1. Guidance for health professionals with IBD/liver disease 2. IBD registry tool  3. Guidance for trainees 4. treatment and vaccines for covid19 from EMA

President 2nd April 2020: Update 1. Guidance for health professionals with IBD/liver disease 2. IBD registry tool 3. Guidance for trainees 4. treatment and vaccines for covid19 from EMA

Please see the following updates 

  1. Guidance for health professionals with IBD or liver disease

https://www.bsg.org.uk/covid-19-advice/bsg-basl-rcp-guidance-for-healthcare-workers-with-moderate-risk-inflammatory-bowel-disease-and-liver-disease/

  1. Cvid19 UK IBD registry tool for adult patients

 The tool aims to help identify and reach moderate and high-risk IBD patients. 

The IBD registry tool is currently restricted to those are are aged 18 years or older but they are working on extending its use to under 18s

https://www.bsg.org.uk/covid-19-advice/covid-19-uk-ibd-tool-for-patients-is-now-live/

  1. COVID-19 – RCPCH trainee progression in the UK through 2020 

https://www.rcpch.ac.uk/resources/covid-19-rcpch-trainee-progression-uk-through-2020

  1. EMA press releases related to COVID-19:

Please check EMA’s dedicated webpage on COVID-19 for the latest updates.

Thank you all again for your continued collaborative effort to support professionals  and patients.

Best wishes

Sue Protheroe

e-mail President@bspghan.org.uk

President 2/4/20

PFIC trial

PFIC trial

Mirum Pharmaceuticals is striving to bring transformative medicines who have rare cholestastic liver conditions.  In keeping with their mission they have instituted a a Phase 3 study called MARCH to evaluate the safety and efficacy of maralixibat in pediatric patients with PFIC. Eligible patients in this clinical study may help provide new insights into PFIC and could lead to the first approved drug therapy.  For full details please visit https://pfictrial.com/

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