Life in Lockdown Survey Results
As you will be very well aware, IBD services have been disrupted one way or another by the coronavirus pandemic and we know there has been an impact on you and on patient care. Our Life in Lockdown survey gave us an insight into how services have been impacted by the pandemic from the patient perspective – we received 7,666 responses from people with Crohn’s and Colitis. Look at our blog to find out more about the results and how you can use them.
Information and Resources for Patients
For regularly updated information about Covid-19, please continue to signpost patients to our website: https://crohnsandcolitis.org.uk/news/coronavirus-covid-19-advice
We have recently published a list of the ‘Top 8 things to do after a Crohn’s or Colitis diagnosis’, to help people who are new to the conditions navigate the wealth of information and support available to them. You can signpost patients to the new page using this link: www.crohnsandcolitis.org.uk/new-diagnosis
We have also added a new blog for patients ‘Top tips for getting the most out of your virtual appointment’. This blog answers questions or concerns for patients who have not had a telephone or video appointment before and gives clear tips for before, during and after the appointment.
While we cannot currently mail out patient packs, our online information is a great free resource that you can still signpost patients to.
We have called for everyone with Crohn’s or Colitis to have free access to the flu vaccine on the NHS this season, in a joint letter from our Chief Executive Sarah Sleet and the Presidents of the British Society of Gastroenterology and British Society of Paediatric Gastroenterology, Hepatology and Nutrition to the Joint Committee on Vaccination and Immunisation.
As you’ll know, the NHS guidelines on whether people with Crohn’s and Colitis are eligible to free vaccinations in England, Scotland, Wales and Northern Ireland are open to interpretation. Please encourage patients you consider eligible to get their flu vaccine as soon as possible. To help them with this, you can click here to download our open letter to vaccine providers explaining who with Crohn’s or Colitis is eligible for the free flu vaccine.
GINcast: Gastrointestinal Nursing Podcast
Episode 3 of GINcast explores how the Covid-19 pandemic has changed the way IBD nurses deliver care to patients with Crohn’s and Colitis. Listen to the podcast here.
Do get in touch with us at email@example.com if you have any queries.
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I hope that since my last bulletin, on 28th July, you have remained safe and well and have had time to rest.
Covid -19 has been the focus of bulletins this year, the pandemic having dominated all aspects of life – home, work, school, and healthcare.
We couldn’t foresee that in March, COVID would continue to be with us for so much longer than we thought.
Life has been busy with many challenges, but also with opportunities to reset the way we work.
I trust that you have all been getting to grips with restoring delivery of your services as best as your local resources will allow and that teams continue to be resilient in dealing with patients’ needs and concerns. I hope that trainees are supported to get back on track to achieve their ARCP targets.
One of the spin offs from the pandemic is the way we deliver education. The BSPGHAN Education series is live and also available on demand. The series of twice weekly live webinars offers CPD for trainees, associates and all members and usually a chance to join a friendly chat with colleagues.
Please do get in touch with myself or a council member if you need a discussion about your service or any items below-
1. ‘Shielding’ advice for children and young people
While up to up to 76 000 children were initially shielded at the start of the pandemic, the target was reduced to about 10 000. BSPGHAN this week will be contributing towards updating the national advice with the RCPCH and other key stakeholders. See information on which paediatric patient groups should be advised to ‘shield’ during the COVID-19 outbreak. We have an opportunity to discuss the definition of children who might be seen as clinically extremely vulnerable. As increasingly reassuring data becomes available, the definition includes far fewer children, but it would be good to have feedback from members, as to which children and young people in our speciality remain clinically extremely vulnerable. It seems likely to be restricted to those children and young people who are peri transplant or have specific immune deficiencies, but please do feedback.
2. Recovery and Restoration of PGHAN services
We saw widespread disruption to normal diagnostic activity with very low activity for almost 6 months – see some data https://www.rcpch.ac.uk/resources/covid-19-guidance-paediatric-services .
Changes in clinical practice emerged:- opportunities to redesign some outpatient services using remote consultations and clinical triage may already be altering endoscopy practice to lower volume- higher yield. While endoscopy was restored in children by July to 40% of pre Covid levels, there is a backlog of patients waiting, with concern about variation in activity and unintended harm due to long waits. Endoscopy activity in children is being highlighted to regional commissioning teams in order to support the reduction in the backlog of priority procedures.
3. RCPCH Conference 2020 online – FREE to register NOW. BSPGHAN speciality session is October 22nd 09.00-12.00
British Association for Paediatric Nephrology and British Society of Paediatric Gastroenterology, Hepatology and Nutrition is on https://www.rcpch.ac.uk/news-events/events/conference-webinar-british-association-paediatric-nephrology-british-society
4. BSPGHAN Annual meeting January 26-28th 2021
Please remember to book your study leave to join the virtual BSPGHAN Annual Meeting and AGM.
The meeting will provide a unique opportunity to show case the activity of BSPGHAN’s Working Groups, sessions for the Trainees, PEGHAN and Associate members and a virtual platform for posters.
The importance of the meeting in allowing colleagues to socialise and link up is important we hope that the sessions can be arranged to allow this aspect to continue.
We have delayed the BSPGHAN Annual Meeting in Birmingham to January 2022
5. RCPCH/BSPGHAN Clinical Standards Audit
The audit is up and running again. We have a registered PGHAN Audit lead in around 60% of potential Health Boards and Trusts and so please support the request to bring up the percentage up as high as we can before we start the data capture phase soon.
6. Recent Resource
A national consensus management pathway for paediatric inflammatory multisystem syndrome temporally associated with COVID-19 (PIMS-TS): results of a national Delphi process. https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(20)30304-7/fulltext
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