Charities Supporting Children, Young People and Families with Gut and Liver Conditions
BSPGHAN works closely with charities that provide information, support, resources and research funding to children, young people and families who have a gut or liver condition.
Please do visit their websites to find out more about their valuable work and how they can support you.
Children's Liver Disease Foundation (CLDF)
Formed in 1980, Children’s Liver Disease Foundation is the only UK charity dedicated to fighting all childhood liver diseases. We provide tailored support services to all those affected by childhood liver disease, deliver comprehensive information to healthcare professionals, patients and their families and provide them with one strong voice to effect change in the diagnosis and treatment of paediatric liver disease, giving them hope for the future. In addition we fund vital medical research through a number of grant calls throughout the year. CLDF have recently developed a research hub which aims to increase patient and public involvement through our network of research hub members. Members are parents, carers and young people affected by childhood liver conditions who have an interest in research design and supporting promotion of findings. For further information about our research programmes and the research hub visit www.childliverdisease.org/research
Telephone: 0121 212 3839
Address: 36 Great Charles Street, Birmingham B3 3JY
Crohns in Childhood Research Association (CICRA)
CICRA was founded in 1978 to fund research into Crohn’s disease and Ulcerative colitis, working towards better treatments and training of specialists. We continue to support the development of paediatric gastroenterology in the UK. We are working hard to find out what causes Crohn’s, Ulcerative colitis and all forms of inflammatory bowel disease to help the thousands of children living with these conditions, including those with Very Early Onset IBD.
We lead research into better treatments, help children and families with information and support, work with health professionals to improve care and give children a voice to increase public understanding of Crohn’s and colitis. We believe that all children deserve a childhood unlimited by inflammatory bowel disease.
Details on CICRA research awards can be viewed on https://www.cicra.org/our-research/applying-for-grants/ .
Crohn's and Colitis UK
We’re the UK’s leading charity for Crohn's disease and ulcerative colitis. Founded as a patients’ association in 1979, we now have over 40,000 members across the UK. These aren’t just people who have Crohn's or Colitis – our members also include their families and friends, health professionals and others who support our work.
Guts UK is the charity for the digestive system.
The charity was set up in 1971 to increase the levels of research into diseases of the gut, liver and pancreas so no one suffers in silence or alone. Since then we have funded almost 300 projects and invested £15 million pounds into medical research that leads to better diagnoses and treatments.
Guts UK’s vision is of a world where digestive disorders are better understood, better treated and everyone who lives with one gets the support they need. Our mission is to provide expert information, raise public awareness of digestive health and transform the landscape for research into our digestive system to help people affected by diseases of the gut, liver and pancreas.
020 7486 0341
EOS Network connects with patients/carers, the general public, professionals and associated organisations globally with the aim of bringing people together to achieve our common goal.
To provide support for patients with Eosinophilic Diseases, their families and professional carers.
To increase awareness of Eosinophilic related conditions through education.
To raise funds to promote worldwide research for improved diagnosis, treatment and ultimately to find a cure for Eosinophilic Diseases.
TOFS (Tracheo-Oesophageal Fistula Support) is a charity dedicated to improving the lives of all who were born with the TOF condition.
For nearly forty years we have been helping families through the challenges of bringing up a child with TOF/OA, VACETERL and associated conditions.
We do this by providing one-to-one support, and a range of information and resources to families. TOFS is a recognised source of information for professionals with an interest in TOF/OA. Through our Facebook group we provide a platform where parents and carers of TOF children can discuss the problems they face and gain support from each other. We recognise that some people born with TOF continue to need help and support as adults, which we endeavour to provide.
The TOFS charity also takes an active role in supporting research into the causes and implications of these conditions.