WELCOME
Welcome to the British Society of Paediatric Gastroenterology, Hepatology and Nutrition (known as BSPGHAN), the national, professional and academic society which represents specialty colleagues working for infants, children and young people with digestive and liver disorders.
WHO WE ARE
BSPGHAN is a society that brings together colleagues from a range of professional disciplines and is recognised by the Royal College of Paediatrics and Child Health (RCPCH) as the society responsible for this field of paediatric medicine.
BSPGHAN’s membership is renowned for its friendliness and inclusivity. Membership stands at around 500 members, comprising consultants and specialist trainees in paediatric gastroenterology, hepatology and nutrition; affiliated health care professionals such as specialist dieticians, nurses, pharmacists, clinical psychologists and scientists. This breadth of membership is a great benefit to the society and the wide range or professionals serve to represent our models of care for families. BSPGHAN has Professional groups and Working Parties to advocate for the key issues that our patients face.
Read more about us here.
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News and Updates
![Sample size and appropriate powering of randomised controlled trials in IBD: A Delphi study to achieve minimum recruiting targets for UK studies](https://bspghan.org.uk/wp-content/uploads/2019/10/analyzing-dark-dof-256262-1080x675.jpg)
Sample size and appropriate powering of randomised controlled trials in IBD: A Delphi study to achieve minimum recruiting targets for UK studies
Why is this project being done? A recent project has investigated every RCT in IBD in both adults and children published globally since 1996 (the year the first publication guidance in the CONSORT statement were released). We found that 20% of studies have no sample size estimate to guide how many patients should be recruited to the project. However, for the studies that did calculate power, they used variable and often highly spurious figures of the difference between groups that they expected which leads low numbers of patients included. This has left many studies underpowered and impacts the entire evidence base, as we often see when completing systematic reviews. Guidance, based on actual observed effect sizes, could support trial designers and most importantly ensure funded studies are completed to an appropriate power. What will participation involve? We will ask you to attend a face to face session in one of five locations across the UK for approximately 2-4 hours with 5-12...
![BSPGHAN Endorsement and Special Grants for National meetings](https://bspghan.org.uk/wp-content/uploads/2019/11/BSPGHANLogo.png)
BSPGHAN Endorsement and Special Grants for National meetings
BSPGHAN will be accepting applications for endorsement and funding support from BSPGHAN members organising national meetings in 2020.Endorsed meetings and resources are those that the Society will badge officially as being relevant and important for BSPGHAN Members.
![A Christmas message to BSPGHAN members from the President](https://bspghan.org.uk/wp-content/uploads/2020/01/christmas-2892235_1920-1080x675.png)
A Christmas message to BSPGHAN members from the President
I wanted to wish all our members Seasons Greetings and wish you well for the coming New Year. I hope that you all have a restful break with family and friends. BSPGHAN takes time at the end of each year to reflect on the achievements and challenges of the previous year and set out the work plan for the coming year. Please look out for the Annual newsletter which will be available early in the New Year. In my new role as President, I was keen that the Society inform the membership of our vision of where the society should be. I hope that you managed to see our strategy set out on as “A welcome to BSPGHAN from the President” ont he homepage at https://bspghan.org.uk. I have spent some time speaking to members. A number of themes have arisen this year. Firstly, workforce, pressures have been marked in some centres, compounded by increasing demand for children’s healthcare, greater expectations of the quality of healthcare, and growing financial pressures on the background...
![Sample size and appropriate powering of randomised controlled trials in IBD: A Delphi study to achieve minimum recruiting targets for UK studies](https://bspghan.org.uk/wp-content/uploads/2019/10/analyzing-dark-dof-256262-1080x675.jpg)
PFIC trial
Mirum Pharmaceuticals is striving to bring transformative medicines who have rare cholestastic liver conditions. In keeping with their mission they have instituted a a Phase 3 study called MARCH to evaluate the safety and efficacy of maralixibat in pediatric patients with PFIC. Eligible patients in this clinical study may help provide new insights into PFIC and could lead to the first approved drug therapy. For full details please visit https://pfictrial.com/
RCPCH Release Position Statement on Ehlers-Danlos diagnosis
Please go to https://www.rcpch.ac.uk/resources/establishing-correct-diagnosis-ehlers-danlos-syndrome-hypermobility-type-heds-children to read the full statement.
New 2019 IBD Standards launch
In June the new IBD Standards has been launched with the aim to improve how we care for people with Inflammatory Bowel Disease (IBD) across the UK. These have been created by IBD UK, a partnership of 17 patient and professional organisations, including BSPGHAN, the BSG, CICRA and Crohn’s & Colitis UK. The IBD Standards say what high-quality care should look like at every point of a patient’s journey – from first symptoms, to diagnosis, treatment, and ongoing care, whatever their age and wherever they live in the UK. They also set out how an IBD service should be organised and managed to deliver this. Paediatric and adolescent care has been considered throughout. Announced at the BSG annual conference, these 59 statements set out what good care and treatment looks like for patients with IBD, with the aim that every IBD service in the UK will work to meet these. A new digital IBD Benchmarking Tool has been developed to help with this, so that services can assess how they are doing...
Upcoming Events
Sheffield IBD Study Day with Professor Dan Turner
Sheffield Children's Hospital will be hosting Professor Dan Turner on 5th July 2024. The day promises to be an academic feast, with multiple talks and chance of personal interaction. We wanted […]
Practical Paediatric GI Motility Course
An exciting 2 day hands on, interactive motility course at Evelina Hospital will be held on 11-12 July 2024. The course will be focused on PH Impedance, Oesophageal and Anorectal Manometry, […]
UK Monogenic Inflammatory Bowel Disease Virtual Grand Round
Transforming the care of patients with complex inflammatory bowel disease. Genomic analysis is a foundation of precision medicine. With a better understanding of the molecular causes of inflammatory bowel diseases (IBD) […]
BSPGHAN Education Series: Genetic aetiologies of acute liver failure
Hi there, You are invited to a Zoom webinar. When: Jul 19, 2024 01:00 PM London Topic: BSPGHAN Education Series: Genetic aetiologies of acute liver failure Speaker: Dr R Hegarty […]
Glasgow Gastro Conference
The Royal College of Physicians & Surgeons of Glasgow are organising the next in person Glasgow Gastro Conference on the 13th September. Find out more
National Percutaneous Endocopic Gastrostomy Course
A unique opportunity to both observe and practice the different techniques of PEG insertion in children*WHERE? Northern General Hospital, Medical Education Centre, SheffieldWHEN? 13 September 2024 Course fees are £500. […]
International Academy of Paediatric Endoscopy Training: Training the Paediatric Colonoscopy Trainers – JAG Approved (UK)
Venue: Sheffield Children's Hospital, Western Bank, Sheffield S10 2TH Discounts available for BSPGHAN affiliated delegates. Download the agenda (PDF) Download the flyer for more details (PDF)
10th Congress of the European Academy of Paediatric Societies (EAPS 2024)
Date: 17-20 October 2024 Location: Vienna & Online From world-class networking opportunities and learning new best practices to acquiring a global perspective of the current state of paediatrics, this congress […]
INAC 2024 – the 9th International Neonatology Association Conference
5th – 8th December 2024 Berlin, Germany INAC is geared to address practical problems in Neonatology with a global lens, engaging delegates from all over the world who participate in […]