President Update 23 April 2020- 1. NICE Guidance gastro and liver conditions 2. CCUK Decision tree for children 3. Vulnerable children guidance 4. Zoom teaching for trainees

Dear members,

I hope this message finds you well. BSPGHAN has been working with key stakeholders on rapid guidance. Please have a look at the following links- 


1. COVID-19 rapid guideline on gastrointestinal and liver conditions https://www.nice.org.uk/covid-19

2. CCUK decision tree for children- isolation/ social distancing and shieldingApplicability of “shielding” is complex for children as the evidence for risk of serious illness / mortality from Covid-19 amongst children who are immune suppressed is very limited. This decision tree for families is welcome. 

crohnsandcolitis.org.uk/news/advice-for-people-with-crohns-and-colitis-self-isolation-social-distancing#child-risk

If you’d like to share via social media there is also a short link crohnsandcolitis.org.uk/decision-tree-children
See also RCPCH Shielding list .

3. Vulnerable children guidance

There are unintended consequence of lockdown on some vulnerable families (i.e. those known to CAMHS, social services and those with education, health and care plans.) see PHE Vulnerable children guidance. Bspghan is linking up with the Rcpch and the children’s team at NHS England to consider which groups should continue shielding once the lockdown restrictions are lifted. 

4. Zoom teaching for Bspghan member trainees

I am grateful to our webmaster who has arranged weekly national teaching. The session yesterday was a success with 40 participants. There is uncertainty over training opportunities, progression, rotations, CCT and access to training. PGHAN Csac is actively linking up and supporting trainees. 


5. Strategy 

BSPGHAN has set out a new strategic focus while some initiatives are paused. We continue to contribute to national guidance to keep our patients and colleagues well and as safe as possible. Thinking ahead, we are tackling how best we will support recovery of services, training needs and ensure that children’s best interests are considered when lockdown restrictions start to ease. 

If you wish to highlight issues or signpost to resources, please do get in touch. Please have a look at the website, which is currently being reorganised so that you can find information more easily. Personal thanks to Carla and Kwang Yang Lee our administrator and webmaster for their expertise and to Council for coming together today for an extraordinary meeting. 

With very best wishes 

Sue 

BSPGHAN President

23 April 2020

President Update:  Sunday 19th April 2020   1. BSPGHAN IBD WG Position statement 2. BSG IBD Covid WG Guidance 3. RCPCH Guidance on shielding 4. Non Covid publication

President Update: Sunday 19th April 2020 1. BSPGHAN IBD WG Position statement 2. BSG IBD Covid WG Guidance 3. RCPCH Guidance on shielding 4. Non Covid publication

Dear Members

“For all those people who are finding it difficult at the moment: the sun will shine on you again and the clouds will go away.”

Captain Tom Moore has to date raised more than £25m for NHS Charities Together https://www.nhscharitiestogether.co.uk/ His words have embodied the outpouring of gratitude for Britain’s doctors, nurses and other healthcare workers on the front line.

Captain Tom got it right. He focused on the sacrifices made by health service workers and the efforts of everyone, who has been isolating since March 23. “You’ve all got to remember that we will get through it in the end, it will all be right, it might take time,” “At the end of the day we shall all be ok again.”​

We are humbled by his efforts and appreciation of the amazing work that frontline professionals are maintaining despite extraordinary pressures. The NHS has moved quickly and effectively to convert conference centres into Nightingale Hospitals. Professionals need the protection equipment to make them feel safe. Please make best use of supplies so that those working in high risk sectors are not short of adequate PPE and exposed to risk.

BSPGHAN has engaged with key organisations this week, NICE, RCPCH, BSG as well as our charitable partners. I will signpost you when the Covid-19 NICE Rapid guidance is published on Gastrointestinal and Liver conditions this week and guidance regarding Children who are immunosuppressed shortly after.

Please remind yourself below of the –

1.Bspghan IBD WG advice, and see new guidance that BSPGHAN has contributed towards from-

  1. The BSG,
  2. The RCPCH and
  3. A great non Covid article of importance to the well being of our patients

Also

  1. See considerations for use of PPE, and

Most excitingly,

  1. Trainees please note. Exciting plans to support national teaching by Zoom for BSPGHAN trainee members from trainers, starting off this week live from Birmingham. A national virtual meeting of interest to members may follow.
  1.  https://bspghan.org.uk/wp-content/uploads/2020/04/COVID_IBDWG_HCP.pdf

British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) Coronavirus (SARS-CoV-2) and COVID-19 in children with IBD

Position Statement: Management of PIBD during the SARS-CoV-2 pandemic​ IBD Working Group

  1. https://gut.bmj.com/content/early/2020/04/17/gutjnl-2020-321244

The British Society of Gastroenterology (BSG) COVID-19 IBD Working Group has published service provision, medical and surgical therapy, endoscopy, imaging and clinical trials.​​ The best available data and expert opinion has generated a risk grid for adults that groups patients into highest, moderate and lowest risk categories.

3. https://www.rcpch.ac.uk/resources/covid-19-guidance-paediatric-services

BSPGHAN has contributed towards the new RCPCH guidance.

It is also important to recognise that during this current pandemic, children who are unwell remain more likely to be unwell due to a non-COVID-19 condition than to COVID-19 itself; this includes those with the conditions described in this guidance. However, some children may remain more at risk of COVID-19 related disease, and these children should be protected as far as is possible from infection by ‘shielding’.

  1. https://adc.bmj.com/content/early/2020/04/16/archdischild-2019-318713

It is good to see an important publication from one of our trainee with the Oxford team entitled “hypoglycaemia: a hidden risk in paediatric colonoscopy,” and this sounds an important topic to audit when electives lists are back up and running.

  1. https://www.gov.uk/government/collections/coronavirus-covid-19-personal-protective-equipment-ppe

You will have seen in reports there is now a real concern at national level regarding the shortage of PPE gowns. Yesterday (Friday 17 April), Public Health England issued emergency advice on the use of gowns in clinical areas should shortages arise. It is important to emphasise that everyone should organise care to make best use of stock. The safety of teams is our priority and access to the appropriate PPE.

Stay safe, and if you have news from your region or updates or guidance to share, please get in touch.

Best wishes
Sue
BSPGHAN President April 18th 2020

President Easter Message to BSPGHAN members

President Easter Message to BSPGHAN members

Dear all

I  hope this finds you all well and spending time to rest and restore your batteries over the long weekend. 

The anticipation of working in different ways and the pressure of making new judgements for patient care has been stressful. 

The calmness of the NHS and other frontline carers and their leaders has been remarkable in the face of constant change and education. Their anxiety about risks, protecting themselves and their loved ones at home is real. We hope that increasing knowledge of the virus, on keeping a safe distance and being as well protected as possible, gives them some of the peace of mind that they need.   

It is truly touching to see the tributes for key workers and the acknowledgement of the vital roles that all workers play. 

Keep cascading the message to parents that we are open for “business as usual” as per the RCPCH recent campaign (see link) and keep good records of those who need to be seen later on. 

https://issuu.com/joballrcpch/docs/covid19_advice_for_parents_when_child_unwell_or_in

I am personally grateful to all the Bspghan members who have been so supportive and working hard to contribute to national initiatives and to make new guidance rapidly. A few examples are – 

  • Messages we sent to  NHS leaders and RCPCH that we are worried about routine areas of care for children have been heard and received by government. 
  • We have helped the NHS identify and reach out to our most vulnerable patients.
  • We have written tailored guidance for families and and IBD registry 
  • We have contributed towards rapid NICE guidance. 
  • We have suggested key conditions and timelines for recovery plans when routine services start opening. 
  • We have collaborated with stakeholders and charitable partners such as the BSG, BASL, CICRA,CCUK and CLDF who have have been supportive at achieving a common goal to advise, support and protect our families and staff.  

The qualities that health professionals signed up to – sacrifice, patience, and tolerance have always been present but are clear in the acts of kindness and putting others first. Please give a particular thought to all ward based staff this weekend who are now “masked up” all day. My masked working this weekend has been in short bursts and uncomfortably hot. The ward nurses no doubt feel the same all day, but without complaint and they deserve a huge thanks. 

This crisis has shown us that we can collaborate rapidly and work together, adapt, and break out of the silos that have existed in the NHS. Please also say a thanks to the IT crowds who have worked hard to bring in remote working and conferencing overnight. 

Our thoughts go out to new staff as young medics have been hastily graduated and the retired staff who have returned. Our prayers are with them to stay strong and safe as their offers to support the NHS are not just token efforts. 

We don’t know when this will be over. We hope that Covid testing and a vaccine will bring about change. The knocks and impact on sections of society will be enormous.  Keep the connections and interactions  going. Resolutions to be mindful of the legacies are not self righteous (in my mind); if we can maintain the current emphasis on social and cultural values, and the ability to learn and respond to change when the pressures is on us, things will be different and a bit better.​

Reach out to those in your networks and beyond who may be in smaller teams. Again, a personal thanks to the friends who have helped me each in keeping you informed and connected. They are all leaders and I am enormously grateful. 

Do get in touch if you have ideas, suggestions to share with others, or if you just need a chat. 

Best wishes 

Sue 
BSPGHAN President April 12th 2020

 

President Update 7th April 2020: BSPGHAN IBD Working group statement and Parent /Carer Information Leaflet April 7th 2020

President Update 7th April 2020: BSPGHAN IBD Working group statement and Parent /Carer Information Leaflet April 7th 2020

Dear Members, 

I do hope that this message finds you and your families and friends in continuing good health. It is an unsettling update today on the situation as it unfolds, as it is anticipated that there will be a rapid climb of Covid-19 to hit our hospitals and community services this week and next.  

The focus has to be on pulling together as an NHS team to incident manage life threatening situations. When we emerge from this, there will be an important recovery phase to plan for.  

Today, BSPGHAN has helped to kick start the process and contributed towards a Gap Analysis to feed back via the RCPCH to NHS E. This will help planners understand the need for time dependent diagnostic procedures and appointments for patients who are referred with commonest or high risk PGHAN conditions.    

I am indebted to the BSPGHAN IBD Working Group and the Birmingham Children’s Hospital Nutrition nurses who have prepared the following guidance for members and the two items that you can use for information for parents/carers (attached):

1.BSPGHAN IBD Working Group statement for Health Care Professionals ​ COVID_IBDWG_HCP

Coronavirus (SARS-CoV-2) and COVID-19 in children with IBD. 

2.BSPGHAN IBD Working Group 

PARENT/CARER INFORMATION LEAFLET​ COVID_IBDWG_Parents_Carers

Coronavirus (SARS-CoV-2) and COVID-19 in children with IBD. 

3. Parent/ Carer Information Letter for families of children on home parenteral nutrition (authored by Birmingham Women’s and Children’s Hospital Nutritional Care Team nurses)  Birmingham Letter for HPN patients

I would like to draw your attention to advice  on practice and service provision for patients with IBD. Please mitigate risks of infection to theatre teams and preserve the PPE supply by limiting all but non emergency endoscopy for now. 

Importantly, the parent carer guidance, 2. and 3. provides; –  

a] paediatric-specific advice on shielding, ​helping professionals and families interpret what ” shielding” looks like for  ‘At Risk’ children with IBD who are on immunosuppression and for those on Home PN, and 

b] advice to avoid “late presentation” of febrile episodes in patients with IBD and on home PN.  

I am mindful that I would not ordinarily send out a letter intended for families unless it had been ratified by Council, but in these exceptional circumstances, there is a need for rapid guidance, especially if there is confusion on ‘shielding’ advice. Please can I ask members to check the home PN letter and amend the content as you see fit for local use before you share it with your families.  

The next few weeks may be tough for our teams. Please look after each other and make sure that you stay protected and remain safe.   

Thank you to Jochen and the IBD working Group and a personal thanks to Elaine, Louise and Gemma and all our amazing IBD, Gastroenterology and Nutrition nurses who are working tirelessly to keep our families well informed, safe and well.  

Best wishes
Sue, President of BSPGHAN  
April 7th 2020. 

President Update 7th April 2020: BSPGHAN IBD Working group statement and Parent /Carer Information Leaflet April 7th 2020

President 2nd April 2020: Update 1. Guidance for health professionals with IBD/liver disease 2. IBD registry tool 3. Guidance for trainees 4. treatment and vaccines for covid19 from EMA

Please see the following updates 

  1. Guidance for health professionals with IBD or liver disease

https://www.bsg.org.uk/covid-19-advice/bsg-basl-rcp-guidance-for-healthcare-workers-with-moderate-risk-inflammatory-bowel-disease-and-liver-disease/

  1. Cvid19 UK IBD registry tool for adult patients

 The tool aims to help identify and reach moderate and high-risk IBD patients. 

The IBD registry tool is currently restricted to those are are aged 18 years or older but they are working on extending its use to under 18s

https://www.bsg.org.uk/covid-19-advice/covid-19-uk-ibd-tool-for-patients-is-now-live/

  1. COVID-19 – RCPCH trainee progression in the UK through 2020 

https://www.rcpch.ac.uk/resources/covid-19-rcpch-trainee-progression-uk-through-2020

  1. EMA press releases related to COVID-19:

Please check EMA’s dedicated webpage on COVID-19 for the latest updates.

Thank you all again for your continued collaborative effort to support professionals  and patients.

Best wishes

Sue Protheroe

e-mail President@bspghan.org.uk

President 2/4/20

President Update 7th April 2020: BSPGHAN IBD Working group statement and Parent /Carer Information Leaflet April 7th 2020

President update 31st March 2020 Latest NHS E HPN patient letter for circulation

Dear members

Please share this updated letter C0106 HPN COVID patient information_UPDATED_27 March  with families of children on home parenteral nutrition. It outlines plans that home care providers are putting in place and changes that families may expect. 

Please be aware of the latest advice. 

 “Keeping yourself safe”

“The government is regularly updating its guidance on at-risk groups. In light of the  latest information your hospital teams now consider that patients on HPN are a high risk group, as you/your child have significant organ impairment (GI) and a central venous access device in place. This advice is endorsed by the British Society of Gastroenterology. It advises you to follow the guidance on ‘shielding’ stringently, as outlined by the government, and you are strongly advised to stay at home and avoid any face-to-face contact for at least 12 weeks in the first instance.
This can be challenging but the consensus is it is the best way to keep yourself/your child safe”.

Kind regards
Sue Protheroe
BSPGHAN President 31/03/20
e-mail President@bspghan.org.uk

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